It’s 3 p.m.
“Let’s go!”
“Go where?’ Woops!
That’s a question. Can’t ask
direct questions.
“Someone needs to
tell me where to go.”
No answer, maybe
a shrug and grimace, maybe a “I don’t know.”
But go we must. I looked for back streets and residential
areas where I could putt along at 20-miles per hour. I could be a Uber driver or go to work for UPS
or a pizza place that delivers. I’ve
seen places around town that I didn’t know existed. I have toured a section of Fort Collins with
names from the Eastern Planes, Akron, Limon,
and Arriba. No Genoa, yet.
After 45 minutes
or so, I would try returning home. Ten
minutes in the house and I would hear, “Let’s
go!” or maybe “We’d better be going.” Many
times, her arms would be full of something rolled up in a blanket or maybe pictures
taken from the wall, stuff we mustn’t leave behind, we must take with us.
Attempts to
prepare something to eat would be interrupted with demands to do something,
usually leave, go somewhere. Shut off
the stove and go.
Going out to eat
became risky. Once, as we sat waiting
for our meals, she became increasingly agitated. Trying to find causes for behaviors was , and
is, a major consumer of my time. In this
case, some girls sitting in a nearby booth were having a good time, laughing
and joking.
The Goodwife was
sure they were laughing at her. She
became increasingly agitated. She rose and started to go for those girls. I blocked her exit from the booth we were
sitting in. She became loud and abusive,
turning her wrath on me.
The manager came
over and I asked her to change our order to “to go”. The manager and waiter got things ready to go
as fast as they could. Using one hand
and holding her back with the other, I fished out a credit card, signed the
slip, and the manager helped us to the door.
The end came on
a Tuesday night while I was at the weekly meeting of the barbershop
singers. I got a phone call and I rushed
out of the meeting and headed for the bingo site where a lady had volunteered
to take her.
The lady has lived
with cerebral palsy all her life. She is
small in stature and not sure on her feet.
When I arrived on site, a friend of the caregiver had helped soothe the
savage beast. I soon learned that the Goodwife
had knocked the caregiver over in the parking lot when she tried to keep her
from running away.
I thanked the
friend, I apologized to the caregiver lady, and I got the goodwife into the
car. I knew I had to do something. I couldn’t go on this way.
Three different
people suggested I have her tested for a UTI, a urinary tract infection. After three days of trying to reach our
neurologist with no response, I turned to our personal physician. Not much fun, as under the new company he now
is contracted to, you cannot reach his office.
Instead, you have to do everything through Arizona headquarters.
Finally, we got
an appointment at an urgent care facility where the “pilot fish” lady that does
all the preliminary work for the doctor, got the Goodwife into a restroom and
managed to collect a urine sample.
As we sat waiting
for the doctor, I read all about diabetes on a poster on the wall. When the doctor came, he said there was indeed
an infection, a “mild” one he said. He
prescribed an antibiotic to be taken for four days. He also said she was dehydrated.
“Getting her to
drink water is a chore,” I said.
“What will she
drink?”
“ A little coffee,
maybe some tea, Coke.”
“Give her Coke or
Gatorade or anything she will drink.”
“I just read all
the evils of sweets,” I said and gestured to the poster on the wall.
“Doesn’t
matter. She needs liquid. Give her all the Coke she will drink.”
We picked up
pills at the pharmacy and took one immediately.
It didn’t help much. That evening,
I was tired from going. I resisted the
call to go somewhere until about 9, when I realized it might be a long night if
I didn’t get her settled down, so we
went out at 9 and drove around. It didn’t
help much.
When I pulled back into the garage 45
minutes later, she refused to get out of the car. I left her sitting in the car.
As she had been a flight risk, I had
previously rigged up an extension cord and plugged the garage doors into
it. When I pull the extension plug out
of the outlet, the garage doors won’t open unless you pull the emergency cord
and open them manually.
She was sitting
in the dark in the car in the garage. I
went to shower. When I came back, she was
out of the car wandering around in the garage and had settled down a lot. I managed to get her into bed and that was
the end of that day, a Thursday.
Meanwhile, another suggestion came from
friends at Dementia Together. Try CBD
gummies. The cerebral palsy lady
agreed. She said she had used them for
years and they helped her.
On Friday, we
called on the local CBD store. I had
just about made up my mind to walk on by, because I really couldn’t see the store
itself, only the signs. As we passed by,
a young guy came along and asked if we were looking for the CBD store.
I was a little worried
about taking her into a place where there might be a crowd or noise, but the
young guy wouldn’t take “no” for an answer, so we followed him up the stairs
and into the store. We were the only
people in there.
There followed a brief explanation of the
types of CBD and the benefits. Always
the skeptical one, I though, “Yeah, right,” to myself, but then what did I have
to lose. We bought a small bottle of
Peach-flavored gummies that had both CBD and CBC in them.
When we got out
to the car, I took the bottle out of the box, broke the seal under the cap and
gave the Goodwife one. They were so good
she wanted another, but I managed to delay that.
We took a little
run up to Carter Lake, visited with a man with a dog, always an attraction for “us.” We went home for about 30 minutes before
going to the bar where the 96-year-old guy plays. We were at the lounge until after 9 p.m.,
ate, visited, had a good time. No sign
of agitation or anger.
It was our
miracle day. There hadn’t been a peaceful
day for a long time. Was it too good to
be true? Would I have to reconsider my
opinion that such stuff was another form of snake oil?
Saturday came and
went with only minor disturbances. We
ran through the antibiotics and continued to use the gummies. There have been days when we used two gummies
a day. It hasn’t been perfect, but when
I look back on it, it still seems a miracle that I don’t have to deal constantly
with “Let’s go!”
How did I live
with it? The truth is I was seriously
considering memory care for her. I
couldn’t deal with that kind of stress day after day.
I have since
found some good help for three to five days a week. We are managing. Life goes on.