It all began
around 2011 or 2012. I began to notice
some double vision. My right eye lid
wouldn’t fully open.
In 2012, I got in
to see an ophthalmologist—not an easy task, without an optometrist’s
referral. He opined that I was suffering
from too many birthdays, but made an appointment for me one year later, in
2014.
Lots of other
things were happening. My regular
optometrist retired. For twenty-plus
years, I had taken thyroid pills. The PA was reluctant to renew the
prescription without more testing, quite an unusual protocol. Usually, he would look at the lab reports and
renew my prescription.
Then we moved to
Colorado. I ran out of thyroid
pills. I called on a local PA who needed
me to take all these tests before she would write a prescription. Her conclusion was that I no longer needed to
take the medicine. She was leaving for a
new job, and suggested I call on an endocrinologist.
We made our
final move to Loveland and an endocrinologist’s office was two short blocks
from our new home. After a bunch of
tests, the endocrinologist discovered a “lobe” on my thyroid that was over
producing, thus my no longer needing Synthroid.
Meanwhile, I
scheduled with a local ophthalmologist,
but before I could see The Man, I had to go through his pilot-fish optometrist, who saw nothing
wrong. Wait a minute, this drooping eye
lid, and now eye ball (I had continual double vision by this time, the right
eye slanted down) is normal? He saw that
I was having thyroid problem and concluded I was suffering from Grave’s
Disease.
I reported back
to the endocrinologist. She was adamant;
I most certainly did not have Grave’s Disease.
She arranged for me to see a local ophthalmologist.
I scheduled with
one. I got a call that they were
switching me to another, more suited to my condition. When I actually showed up, I was handed off
to yet a third doc, but by the time the two pilot-fish got done with me, they
actually referred me to a fourth guy. I
began to feel like a fumbled football, except no one wanted to cover me.
In the meantime,
after a bunch more tests, including collecting my urine for 24 hours, twice,
the endocrinologist concluded that I needed to reduce the size of my thyroid,
because it was now hyPER-active. I had
two choices: surgery (no thanks, I
remember my mother having that done. She
hardly got over her seemingly-permanent sore throat.)
Or I could
ingest a radio-active iodine capsule.
Which I eventually did, but I had to find a time when I didn’t need to
be around people for five days. I took
the capsule five days before my appointment with the ophthalmologist, thinking
I would be clear of my radioactivity by then.
Reading the fine
print, I discovered I was cleared to be around healthy adults after five days,
but should avoid pregnant ladies and children for another few days. So I called the ophthalmologist’s office to
be sure none of the persons attending to me would be pregnant.
I mentioned to
the lady on the phone that I shouldn’t be around pregnant ladies or
children. She exclaimed, “Oh! Doctor
Arnold is a pediatrician. His office
will be full of children.” Appointment
cancelled.
In the meantime, we
established contact with a new family physician who listened to my tale and
immediately ordered an MRI of my head.
He felt I had classic brain tumor symptoms. He was astounded that none of the other
doctors had suspected that.
A few times in my life, my father suggested I
needed to have my head examined. You can
guess when he said that. So I had my
head examined. Sure enough, just as Dad
suspected, they found nothing there.
Dr. Prows, the
family physician, got me an appointment with one of two neuro-ophthalmologists
in the state. I had to drive across
Denver to Aurora to Anschutz eye clinic. I did that for three or four years.
Dr. Pelak diagnosed
me with myasthenia gravis. She put me on
prednisone. Not bad until I had to withdraw.
My right eye came back up. My eyelid stopped drooping. I had single vision again—for a while.
My right eye kept
moving up. I had double vision again. For a year or two, I took Imuran. Dr. Pelak felt I no longer had symptoms of
myasthenia gravis, so we tapered off Imuran.
My eye stabilized, and she advised that I could possibly have surgery to
correct my double vision.
The surgeon told
me he couldn’t straighten out my double vision by operating on the right eye
alone. He must work on both eyes. Fearing unfortunate results, I exercised the surgeon's option
two: live with it.
Eventually, I decided
I might want to try to have single vision once again. I did not want to have to make several trips
across Denver, so I went back to Dr. Arnold, the pediatric ophthalmologic
surgeon I was scheduled to see all those years ago.
After another
year of anguishing over what to do, in April, I scheduled the surgery for the
last week of October. That date got
complicated when our daughter was diagnosed with breast cancer and her surgery
date was on the very same day. We
decided that we should both keep our dates with the surgeon. And we did.
I went in at
6:45 a.m. and was back home by 10:30 a.m.
I had a patch over my right eye hiding two or three loose sutures. There was one suture not tied up yet in my
left eye as well. I returned to the
doctor’s office at 12:45.
A young lady checked
my vision and used prisms to get me zeroed in on eye charts near and far. She wrote down a bunch of numbers and Dr.
Arnold came in, looked at the numbers, and began tugging at the loose sutures
in my eyes. That was the most painful
part of the ordeal.
He would pull a
while, and I tried to keep my squirming to a minimum. Then he would check my vision on the wall
chart and up close with a target on a stick he kept in his breast pocket. We went through that procedure three or four
times. Each time, the tugging lessened.
When he felt I was
zeroed in on the targets, he knotted and clipped the sutures. How he could do all that with the fine sutures,
invisible to me, wearing rubber gloves, is beyond my ken. I have nothing but admiration for his skills.
The sutures
would eventually disappear, he said.
Now, it is up to my brain to adjust to the new field of vision. It will take a while, weeks, probably, he
said.
We were home
again by 2:30. I had single vision at an intermediate distance, not yet far off
or close up. Post op advice said I
should watch television, avoid trying to do close up work, like reading. I understood.
The problem with
close up work is the eyes have to slightly cross, and to do that hurt. It’s like a sprained ankle that you have to
use very carefully for a few days while the muscles heal. Two weeks later, I can read pretty well with
magnifier lenses that I have used for a few years.
I have single vision
close up with magnifiers, and also at a distance. I still have some double vision on the
periphery, left and right, and up. The “up”
business is a bit disconcerting, because I am used to looking over my glasses
to see really close. That’s not
working. Maybe I will learn to use my
bifocals?
It takes some
time and muscle work to expand my single vision, but that is limited by the muscle
fatigue. My eyes get tired and it can be
painful to look right, left, up and down later in the day. Each day the muscles get stronger and I am
hopeful that one day I will have single vision in all fields.
In the meantime,
the daughter has had a second surgery to remove more lymph nodes. We await lab reports that hopefully will
confirm that the lymph system is cancer free.
She has radiation and reconstruction left to go. It has been a long road, but the road is less
rocky than it would have been fifty years ago.
Modern medicine has made great strides and we both are grateful for our
health care.
Now, if you got
this far, I apologize for indulging in old people’s favorite thing: discussing health issues and doctor
visits. But then, you didn’t have to
read this!
I tried to take
advantage of my blood-shot eyes for Halloween, but it wasn’t too
effective. I have the wrong head shape
for either Lurch or Frankenstein’s monster.
I failed to scare a single trick-or-treater.
The current state of affairs. “This too shall pass.”